It may sound crazy, but sometimes I forget that my son Cameron has cancer. Sure, I remember that he uses a wheelchair, a gait trainer or scoots on his rear end to move around because he can’t stand or walk on his own. I remember he uses grunts, gestures, one-handed signs, the occasional intelligible word … Continue reading Sometimes I Forget
My son, Cameron, eighteen months old at the time, was halfway through his radiation treatments. He had a big swath of angry, hairless scalp from his left eyebrow to the middle of his head, above his left ear to the back of his neck. Gleaming red, his radiation burn stood in stark contrast to his … Continue reading She Left a Mark
Last week, for the first time in months, Cameron was admitted to the hospital. Oh, we’ve come close a few times recently, only to be sent home at the last minute, with instructions to return if he worsened. This time Cam got his ticket to the respiratory floor, identical to the surgery floor, except our … Continue reading Hope is a Drug
I haven’t posted in over six months. Not because I haven’t been writing and working, but because life got in the way. Again. Sure we had some normal stuff happen, like moving to a new house in a different town and losing my grandfather, but the main reason is because Cameron’s dang body just … Continue reading Cancer: The Gift That Keeps on Giving
Today the Barrow family invented a holiday! Two years ago today, Cameron was diagnosed with a brain tumor, though we didn’t yet know what kind. Two years ago today, the emergency room doctor wheeled in a monitor and showed Kris and me an image from a CT scan that showed a mass the size of … Continue reading Happy Brain Day!
It’s the name of this blog. And its a way of life (okay, that's a bit dramatic, but stay with me...) I first started this blog in an attempt to connect with other parents of pediatric cancer patients. I picked kidsgetcancer.com because I thought it might be easier to find in search engines … Continue reading Cam’s High Five…What’s it Mean?
My son Cameron is medically complex...if you are one of my twelve subscribers, you know this. But did you know in the state of Colorado, if a special needs child qualifies for a nurse aide, his parent can get certified to be that child’s nurse aide and get paid for it? This was an amazing … Continue reading Missed It By Five Inches!!
Last week Cameron had a neurological and motor assessment, one year after the end of the radiation to his brain, and six months after his hemispherectomy. For those of you unfamiliar with the neurocognition test, it involves asking the subject to do things like place blocks in a cup, point to the picture of the … Continue reading Buddy the Elf, What’s Your Favorite Color?
This blog has been here for a few months, but it never felt quite right. It's been about Cam, and it still is, but it's also about me, which just makes me squirm. But lately, I've been thinking, why not just go with it? I’m here on Earth just trying to do what everybody else … Continue reading A new direction with this blog thing…
Today is September 12. Although yesterday was a day of reflection and grief, honoring the memory of those that fell 16 years ago, today is- at least in my house- a minor holiday. Cameron rang the bell one year ago today, signaling the last day of proton radiation. Lots of crying around here this week … Continue reading My Baby Gets a Wish