My son, Cameron, eighteen months old at the time, was halfway through his radiation treatments. He had a big swath of angry, hairless scalp from his left eyebrow to the middle of his head, above his left ear to the back of his neck. Gleaming red, his radiation burn stood in stark contrast to his … Continue reading She Left a Mark
I haven’t posted in over six months. Not because I haven’t been writing and working, but because life got in the way. Again. Sure we had some normal stuff happen, like moving to a new house in a different town and losing my grandfather, but the main reason is because Cameron’s dang body just … Continue reading Cancer: The Gift That Keeps on Giving
Today the Barrow family invented a holiday! Two years ago today, Cameron was diagnosed with a brain tumor, though we didn’t yet know what kind. Two years ago today, the emergency room doctor wheeled in a monitor and showed Kris and me an image from a CT scan that showed a mass the size of … Continue reading Happy Brain Day!
My son Cameron is medically complex...if you are one of my twelve subscribers, you know this. But did you know in the state of Colorado, if a special needs child qualifies for a nurse aide, his parent can get certified to be that child’s nurse aide and get paid for it? This was an amazing … Continue reading Missed It By Five Inches!!
Last week Cameron had a neurological and motor assessment, one year after the end of the radiation to his brain, and six months after his hemispherectomy. For those of you unfamiliar with the neurocognition test, it involves asking the subject to do things like place blocks in a cup, point to the picture of the … Continue reading Buddy the Elf, What’s Your Favorite Color?
This blog has been here for a few months, but it never felt quite right. It's been about Cam, and it still is, but it's also about me, which just makes me squirm. But lately, I've been thinking, why not just go with it? I’m here on Earth just trying to do what everybody else … Continue reading A new direction with this blog thing…
Today is September 12. Although yesterday was a day of reflection and grief, honoring the memory of those that fell 16 years ago, today is- at least in my house- a minor holiday. Cameron rang the bell one year ago today, signaling the last day of proton radiation. Lots of crying around here this week … Continue reading My Baby Gets a Wish
Welcome to Lauren’s philosophy corner...don’t hang up! I need your help with a brain buster. I got into the middle of a very interesting conversation with my meningioma Facebook group recently. Because meningiomas (tumors of the lining of the brain) are ALMOST always considered benign, one of them asked if they could be considered a … Continue reading What’s a Cancer Survivor?
Today is the day Cameron was supposed to have his next brain surgery. Instead, I get to be home with him, to laugh and worry and stare at the snow coming down in May. Cam has a specific, rare type of epilepsy characterized by subtle seizures that, if left untreated, will likely cause his development … Continue reading We Wait and We Play
My kid has cancer. It's kinda messed me up. I still feel like a normal person most of the time. I do normal things- drink coffee at work, drive my other son to soccer in a mini van, help my daughter with her homework, argue about money with my husband, buy frozen pizzas for dinner- … Continue reading Hi. My Kid Has Cancer.