I haven’t posted in over six months. Not because I haven’t been writing and working, but because life got in the way. Again. Sure we had some normal stuff happen, like moving to a new house in a different town and losing my grandfather, but the main reason is because Cameron’s dang body just
Category: Epilepsy
Buddy the Elf, What’s Your Favorite Color?
Last week Cameron had a neurological and motor assessment, one year after the end of the radiation to his brain, and six months after his hemispherectomy. For those of you unfamiliar with the neurocognition test, it involves asking the subject to do things like place blocks in a cup, point to the picture of the
We Wait and We Play
Today is the day Cameron was supposed to have his next brain surgery. Instead, I get to be home with him, to laugh and worry and stare at the snow coming down in May. Cam has a specific, rare type of epilepsy characterized by subtle seizures that, if left untreated, will likely cause his development