Today the Barrow family invented a holiday! Two years ago today, Cameron was diagnosed with a brain tumor, though we didn’t yet know what kind. Two years ago today, the emergency room doctor wheeled in a monitor and showed Kris and me an image from a CT scan that showed a mass the size of … Continue reading Happy Brain Day!
Last week Cameron had a neurological and motor assessment, one year after the end of the radiation to his brain, and six months after his hemispherectomy. For those of you unfamiliar with the neurocognition test, it involves asking the subject to do things like place blocks in a cup, point to the picture of the … Continue reading Buddy the Elf, What’s Your Favorite Color?
Today is the day Cameron was supposed to have his next brain surgery. Instead, I get to be home with him, to laugh and worry and stare at the snow coming down in May. Cam has a specific, rare type of epilepsy characterized by subtle seizures that, if left untreated, will likely cause his development … Continue reading We Wait and We Play
Cancer is the gift that keeps on giving. Since my son was first diagnosed with a brain tumor fifteen months ago, it has caused all kind of problems now leading up to a whole new adventure for my little guy...epilepsy. Last week we checked into the hospital for an extended electroencephalogram (EEG) with video and … Continue reading Epilepsy Sucks Too
Lately it seems like all I hear about is how awful people are, shooting up elementary schools and bombing children with chemicals. I turned off the television last night and went to bed feeling sad and icky, but this morning it just continued. It's a relentless parade of sociopaths and politicians, hate and selfishness, making … Continue reading Maybe People Don’t Suck As Bad You Think