It may sound crazy, but sometimes I forget that my son Cameron has cancer. Sure, I remember that he uses a wheelchair, a gait trainer or scoots on his rear end to move around because he can’t stand or walk on his own. I remember he uses grunts, gestures, one-handed signs, the occasional intelligible word … Continue reading Sometimes I Forget
Last week, for the first time in months, Cameron was admitted to the hospital. Oh, we’ve come close a few times recently, only to be sent home at the last minute, with instructions to return if he worsened. This time Cam got his ticket to the respiratory floor, identical to the surgery floor, except our … Continue reading Hope is a Drug
I haven’t posted in over six months. Not because I haven’t been writing and working, but because life got in the way. Again. Sure we had some normal stuff happen, like moving to a new house in a different town and losing my grandfather, but the main reason is because Cameron’s dang body just … Continue reading Cancer: The Gift That Keeps on Giving
Today the Barrow family invented a holiday! Two years ago today, Cameron was diagnosed with a brain tumor, though we didn’t yet know what kind. Two years ago today, the emergency room doctor wheeled in a monitor and showed Kris and me an image from a CT scan that showed a mass the size of … Continue reading Happy Brain Day!
My son Cameron is medically complex...if you are one of my twelve subscribers, you know this. But did you know in the state of Colorado, if a special needs child qualifies for a nurse aide, his parent can get certified to be that child’s nurse aide and get paid for it? This was an amazing … Continue reading Missed It By Five Inches!!
Last week Cameron had a neurological and motor assessment, one year after the end of the radiation to his brain, and six months after his hemispherectomy. For those of you unfamiliar with the neurocognition test, it involves asking the subject to do things like place blocks in a cup, point to the picture of the … Continue reading Buddy the Elf, What’s Your Favorite Color?
This blog has been here for a few months, but it never felt quite right. It's been about Cam, and it still is, but it's also about me, which just makes me squirm. But lately, I've been thinking, why not just go with it? I’m here on Earth just trying to do what everybody else … Continue reading A new direction with this blog thing…
Today is the day Cameron was supposed to have his next brain surgery. Instead, I get to be home with him, to laugh and worry and stare at the snow coming down in May. Cam has a specific, rare type of epilepsy characterized by subtle seizures that, if left untreated, will likely cause his development … Continue reading We Wait and We Play
Cancer is the gift that keeps on giving. Since my son was first diagnosed with a brain tumor fifteen months ago, it has caused all kind of problems now leading up to a whole new adventure for my little guy...epilepsy. Last week we checked into the hospital for an extended electroencephalogram (EEG) with video and … Continue reading Epilepsy Sucks Too
Lately it seems like all I hear about is how awful people are, shooting up elementary schools and bombing children with chemicals. I turned off the television last night and went to bed feeling sad and icky, but this morning it just continued. It's a relentless parade of sociopaths and politicians, hate and selfishness, making … Continue reading Maybe People Don’t Suck As Bad You Think